First Visit to HealthInfo Island in Second Life Very Educational - And Fun Too!

HealthInfo Island on Second Life


Yesterday I visited HealthInfo Island in Second Life for the first time. I teleported down close to the beginning of the Path of Support, then I meandered down the path, which is a line of billboards of the over 60 different support groups found in Second Life so far.



A couple I found memorable are the board for the Online Schizophrenic Hallucination Demo (I'm going to have to try that) and of course the Fibromyalgia Support, but there is also a Neurological Disorders Research and Support Committee founded by Maria Mouroutsos.

This is the first, and only SL group for neurological disorders, for those who have them, and for friends and family that want to learn. This group shares research information, tips on how to cope with some of the strange, and rheumotological effects, like fibromyalgia, and also to just share funny things, to help ease a little bit of the frustration.
This is also the first time I've actually felt like fibromyalgia might be in the right classification. I joined this group.

All I did was wander around outside. Never even made to any of the buildings. The Alzheimer's group had a wonderful display. I'll blog that one another day. Let me just close by saying that this is a new medium that just might be able to help people even more than the internet has, to take control of their own health care. Words like responsibility and empowerment are flying around in the sky out there on HealthInfo Island, and I think there might actually be something to them...

The language of health care IS different from what we know. Don't be afraid to ask for a translation.














Here's my avatar Vera Jewell wearing the freebie forget-me-not pin that I got on HealthInfo Island.













And here I am with my freebie medical stick that I could have worn as a pin but I chose to carry as a sword. You never know.

Comments

Post a Comment

Welcome to The ICIE and thank you for commenting!

Note: If you are leaving a comment on this blog in an effort to advertise anything except your own valid topical blog or website, your comment will be marked as spam and will not be posted.

Popular posts from this blog

Marisol Maldonado "comes out" of the autoimmune closet with husband Rob Thomas' hit song & video "Her Diamonds" - check it out; it's way cool

Image
Watch the music video Rob Thomas - New Music - More Music Videos I think Marisol Maldonado has taken a very brave step, career-wise, to come out like this about her autoimmune disease. Being a model is a very physical profession and as those of us with ICI know, coming out at work, any kind of work, is a big deal. I'd like to send her a really big thank you for raising awareness of autoimmune disease in general. I wonder what the song/video title means? Her Diamonds. And she says ooh I can't take no more Her tears like diamonds on the floor And her diamonds bring me down 'Cause I can't help her now Losing her sparkle? Here's what Rob Thomas says about it: The album’s first single, the kaleidoscopic “Her Diamonds,” is the most personal song Thomas has yet committed to disc. Rob’s wife Marisol is courageously battling an autoimmune disease, and “Her Diamonds” was written “about a couple dealing with that on a day-to-day basis,” explains Thomas. “There’s an incre...
Read more

Nerve Damage on the Vaginal Cuff After Total Hysterectomy

 Here's the link to the actual article describing my experience:  https://medium.com/@SherrilLynn/nerve-damage-to-the-vaginal-cuff-after-total-hysterectomy-6d9a2e576f15 .     This has happened to me and I can find virtually NOTHING written about it, except the pain filled pleas of other women it has happened to, looking for answers as to why this has happened to them and what they can do about it.  I'm going to start a place for other women who have and are experiencing Nerve Damage to the Vaginal Cuff after a total hysterectomy (as far as I can tell there's no cure and nothing to do about it but pain management) to publish their stories here on the ICIE blog.  A collection of experiences of women who have Nerve Damage to the Vaginal Cuff (I'm going to shorten it to NDVC since no one in the medical field has deigned to give a name to this diagnosis), after a total hysterectomy.  I'm pretty sure there are quite a few of us out there but no one has co...
Read more

Update: Intro, and Book Review Part A, Fibromyalgia Mystery Still Unsolved, or The Debunking of the Fibromyalgia Relief Centers and Paul Whitcomb, DC

This post was originally published on 4/5/08. I was just responding to recent a comment to it and decided to check its links. I saw that there is at least one important dead link, so I'm updating the post and re-publishing it. The Whitcomb series have been ever popular on my blog (check the sidebar for titles and links to all of them). I was just checking the stats for this particular post on statcounter.com, and I see that someone has visited it 212 times. That seems a little odd to me. Anyone have any ideas for me on that? Anyway, on with the update. Any changes I've made are in green italics. "Silence is fraud's best friend. Word of mouth is fraud's worst enemy. Pass the word!" Fraud Aid Let me say this first and foremost: There is no cure for Fibromyalgia. If there were a cure for Fibromyalgia I would know about it. There. Is. No. Cure. Why, you might ask, am I doing this? I'm really tired of Dr. Whitcomb's holdings (book, website) comin...
Read more