Nerve Damage on the Vaginal Cuff After Total Hysterectomy

This has happened to me and I can find virtually NOTHING written about it, except the pain filled pleas of other women it has happened to, looking for answers as to why this has happened to them and what they can do about it. 

I'm going to start a place for other women who have and are experiencing Nerve Damage to the Vaginal Cuff after a total hysterectomy (as far as I can tell there's no cure and nothing to do about it but pain management) to publish their stories here on the ICIE blog.  A collection of experiences of women who have Nerve Damage to the Vaginal Cuff (I'm going to shorten it to NDVC since no one in the medical field has deigned to give a name to this diagnosis), after a total hysterectomy.  I'm pretty sure there are quite a few of us out there but no one has counted so who knows?

If you want to be included in the collection, send your story to me at... ?  {I'm working on it.}

Leave it in the comments if you want, and I'll let y'all know when I figure out a better way.

This has happened to me and I can find virtually NOTHING written about it, except the pain filled pleas of other women it has happened to, looking for answers as to why this has happened to them and what they can do about it. 

I'm going to start a place for other women who have and are experiencing Nerve Damage to the Vaginal Cuff after a total hysterectomy (as far as I can tell there's no cure and nothing to do about it but pain management) to publish their stories here on the ICIE blog.  A collection of experiences of women who have Nerve Damage to the Vaginal Cuff (I'm going to shorten it to NDVC since no one in the medical field has deigned to give a name to this diagnosis), after a total hysterectomy.  I'm pretty sure there are quite a few of us out there but no one has counted so who knows?

If you want to be included in the collection, send your story to me at... ?  {I'm working on it.}

Leave it in the comments if you want, and I'll let y'all know when I figure out a better way.


Comments

  1. I can't locate the other woman's stories on medium.com.

    ReplyDelete
    Replies
    1. There aren't any yet. Some people are incredibly shy about airing their privates in public. Go figure.

      Delete
  2. I had a total hysterectomy 2 years ago and I have had constant vaginal pain since I went to my gynecologist he acted like he couldn't understand why I was hurting I also went to a urologist she suggested I had nerve damage it's a pain it's hard to explain it's like a shocking sensation it's like someone has clamped you with jumper cables and an electrocuting you in that area

    ReplyDelete
    Replies
    1. I'm very sorry to hear about your doctor's... lack of back bone. What else could it be? He won't diagnose the damage he's caused is what it sounds like to me. On the medium.com version of this article I went into exactly how my doc diagnosed me with nerve damage. He so didn't want to say the word, that he didn't. He said nerve... and he whispered the word "nerve." When I was checking out the lady asked me what he said and I replied "nerve damage" and she opened the whole file up to look, then said 'you're right; that's what he said.'

      Unfortunately, they make us sign away any rights we might think we have after the surgery, before the surgery. It's a dangerous business, surgery.

      Your pain sounds terrible. Mine is just regular old deep to the core of my very being pain. My allergic reaction of itching to my pain medicine got worse and worse until I finally had to stop taking it. Now I've got a script for naprosyn and I try my very best not to trigger the pain in the first place. That's where I'm at right now; I would appreciate hearing how you are doing, when and if you are able to respond.

      Thank you for writing.

      Delete
  3. I too went through a vaginal cuff tear nightmare! I am now searching for answers.

    ReplyDelete
    Replies
    1. Good luck to you. It's a big secret and as long as we keep up with the pretense, I don't think we will ever find real answers.

      Delete
  4. I am 1 year out from a total hysterotomy and I still have pain at the top of my cuff. Any suggestions on help?

    ReplyDelete
    Replies
    1. I'm 5 years out, so no. No suggestions on help, except maybe think about coming out from the curtain of anonymity so we can band together and DEMAND answers.

      Delete
  5. I’m having the same problem. . Do you know if they can inyect the nerve?

    ReplyDelete
    Replies
    1. I assume you mean 'inject' the nerve. With what? Pain medicine, I assume. I don't know about you but my experiences with injected pain meds have not been good. There's no way I'm letting anybody with a foot long needle NEAR the very core of my being, where my pain in located. If that's what you want to do though, it shouldn't be hard to find someone who's will do it to you. Please be careful who you choose to give that honor to, though. There are many more who don't know how to do but do it anyway, than there are pain management professionals who do know how to administer pain medicine via a very long needle. In my experience: Look for someone with an Indian/Ayurvedic background. It's also really helpful if they seem to give a damn if they hurt you or not. I've experienced several that didn't fulfill either qualification, and one who filled the first but not the second. I didn't let him repeat the injection when the first one wore off. Three months down the road my memory of the soul stripping pain he caused when he stuck that wiry thing down, down, down into my shoulder were still extremely distinct.

      Good luck!

      Delete

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