Saturday, September 10, 2016

What is the "Endo Diet?"

Thanks to the Endo Warriors for putting this guide together.  I was told I have "allergic sensitivities" to just about everything on this list in 1989, the same year I was diagnosed with endo. The things I wasn't allergic to, my digestive system communicated to me in no uncertain terms (Irritable Colon or IBS dx in 1993) that I was not to consume them. So I thank my body's innate intelligence for watching out for me again. 

A photo posted by Endo Warriors (@endowarriors) on

Tuesday, August 16, 2016

"No Estoy Enferma." The title means "I am not sick."

This is a really creative animation of one of Frida Kahlo's most famous (among the chronically ill) self portraits, The Broken Column.  The originals are on Instagram https://www.instagram.com/p/BI3ug5_jSuB/?taken-by=lacejadefridaoficial and Tumblr https://www.tumblr.com/reblog/148668368448/oJ9mRBlb.  So click the play arrow and if you don't understand any Spanish I will put the translation at the bottom of this picture for you.

No cheating!  Watch the animation first!

No cheating!  Really.

The animation translates as:  "I am broken but I am happy to live while I can paint."  Or something to that effect.

I'd like to know more about the lacejadefrida.com artist, but the site is all about Frida. 

Monday, August 8, 2016

Judgement of Others from Texas Endo Advocates

A photo posted by TexasEndoAdvocates (@texasendoadvocate) on

I've been dealing with these types of problems in my immediate family for almost exactly three years now.  Last week the problem suddenly got much worse.  More on that soon.

Saturday, April 23, 2016

Endometriosis Foundation of America continues the awareness and education of our March Awareness Month into April with short videos by Padma Lakshmi, Allison Williams and so on.

Here are a few videos from the Blossom Ball this year.  Start each one individually because it really annoys me when a video starts as soon as I click on a site and won't stop.  They're all short and sweet.  Especially the one on the far right. Allison Williams' letter to endo for Lena Duncan.  Enjoy.

Endometriosis Foundation of America from Endofound on Vimeo.

In case you don't know who Allison Williams is, like I didn't:

Allison Williams

Allison Williams is an American actress, comedian, and singer. She is best known for her role as Marnie Michaels on the HBO comedy-drama series Girls. Williams was born and raised in New Canaan, Connecticut, and is the daughter of former NBC Nightly News anchor and managing editor Brian Williams and Jane Gillan Stoddard, a T…

I would like to post more stuff from Endofound, but some of the information they are giving out is not correct, it's dated.  I'll get more into that if and when I can.  Right now I'm just so tired.  So much more I want to do.  But I'm in such terrible pain, and I'm so tired and having had endo for all these years (I'm 59), has done other damage to my body and health that I'm finding out about now.  So I'll post when I can, and thanks for reading the ICIE. 

Friday, April 1, 2016

Sorry, Ma

My DM (Dear Mother) thinks that blogging is bad for me.  Sorry, Ma.  I've gotta do what I've gotta do.  And I've gotta do this.

A reminder to myself:

A photo posted by Well+Good (@wellandgoodnyc) on

Thursday, March 31, 2016

Best ever: Mankoski Subjective Pain Scale for Chronic Pain

P.S. The creator of this fabulous document has endometriosis.  And you must upload a good document to Scribd in order to download this one. 

Or you can just take this jpg version: 

Monday, March 21, 2016

Lupron for Endometriosis - NOT!, and a little bit of my story - Endometriomas

UPDATED:  March 21, 2016 - also World EndoMarch 2016 day


I just stumbled across this article/post about the nightmare of Lupron, on Pinterest.  I'm sharing it here because it is well written, factual, and it's a small sample of the insanity that has surrounded people with Endometriosis for decades.  And because I'm so glad I didn't take Lupron or any of the other useless but dangerous drugs that were being promoted for endometriosis back when I was first diagnosed.  (I have the Endometriosis Association, founded in 1980 by Mary Lou Ballweg, to thank for providing me with the knowledge and courage to buck the medical system from the beginning of my diagnoses.)  The nightmare is that doctors are STILL prescribing Lupron for Endo.

Wednesday, October 1, 2014

Is this what's wrong with me? Am I lost in grief? Reblogged from Then Everything Changed.

Sorry I haven't been able to put out any original blog posts for several months.  I'm going through something and I can't write about it yet because I'm not sure exactly what it is. I think I need to get through it and get some perspective before I can write about it.  I'm not even able to read much right now (chronic migraine) but I do still occasionally come across something that I identify with strongly or am really moved by... like the post below that I'm reblogging.  It's got me to thinking along the right track, I hope.  And I hope it will help others also.  
Lost  in Grief
Originally posted on Then Everything Changed: A Glimpse of Life With and Without Invisible Illness.

"For the majority of people coping with chronic pain or illness it came on suddenly while we were innocently living normal lives.  Whether we were nine or fifty years old chronic pain brought about devastating changes in the life we knew.  These are no small changes, no small loses.  Marriages end, jobs are lost, homes are lost, confidence is lost, we are limited and altered in ways we never imagined.  Yet we do our best to limp along, many of us fighting like hell to find our way back to the life we once knew.  The truth that none of us want to admit is that that life is gone.  It’s true and it hurts, it’s a crushing conclusion and it’s an inevitable conclusion.  What we need to do before we go any further is allow ourselves to grieve for what we have lost. That will take time and a…"
View original 1,197 more words

Friday, July 18, 2014

For the one year anniversary of my endo excision surgery...

... I shall share with you this wonderful post about a surgery very similar to mine that happened this month.  But it's from the perspective of the waiting room, by Erin's friend, Marissa.  I'd say she's a very good friend.  The post is hilarious AND it made me cry.  It's great.  Sigh.

Putting the ME in EndoMEtriosis-Part 1

on Erin's Guide to Living Blog

If you've read my blog at all, you know I like to put pictures in my posts.  This is a word picture, but I think it goes.

Erin & Marissa, I hope you're new online friends.  And to all of you out there that I've met online (NOT just Facebook!) since I started blogging in 2007, I'm really, really thankful for you.  Especially since I moved in 2011 and had less than a year to make face to face friends in my new city before I had to start figuring what was wrong with me this time.  It's been a long hard road and I'm not at the end of it yet.  But I know all of you virtual buddies will be there for me.  I'm also super grateful for the closed groups I've found that deal specifically with the health conditions I have to learn about now:  Nancy's Nook Facebook group for Endometriosis Discussion and Education, and happypelvis group on Yahoo.  I really don't know what I'd do if I had to learn about this stuff all alone, and there's literally nothing better than being able to communicate with others who have been or are going through the same thing you are.  Bless y'all and keep y'all.  (Maybe I've been in the south for a decade too many...??)

Peace, out.



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