Showing posts from September, 2008

National Pain Care Policy Act of 2008 passes in the House of Representatives

GREAT NEWS from the American Pain Foundation:

summary (also printed below)

Now on to the Senate!Here's how you can help, and it's REALLY EASY:

Go to the APF Online Advocacy Center. Click Take Action and fill out the form. Click Next Step, and your senators names will be filled in. Your can email and/or print your message to the senators (you can use the message the APF has already written for you, if you want).

For Release: September 24, 2008
Contact: Tina Regester
(443) 690-4707

Statement attributable to: Will Rowe, Chief Executive Officer, American Pain Foundation


Today’s Vote Represents Critical Step to Improving Pain Management in America

Baltimore, MD—“The American Pain Foundation (APF) applauds the U.S. House of Representatives for taking a critical step in helping t…

Working From Bed

Original publication date 7/8/08

9/25/08 Update: Ergoquest Recliner Workstations; Homemade Supine Workstation; Supine Zero Gravity Chair; Computing in Comfort

I do my computer work on a laptop from a very nice recliner because the time I can sit up at a regular workstation is very finite. It depends what my pain level is on the particular day. In trying it out so I can know what to tell the SSA, I've found that the time I can sit at a regular workstation decreases with each day in a row that I do it. In other words, the more I do it, the worse it gets.

I just use a tray with legs in the recliner, but it would be nice to have one of these Laptop Mount Boom Arm Workstation thingees.

Although I don't know if my mom would appreciate the aesthetics (or lack thereof) in the middle of her living room... she could probably live with it if it meant I could be gainfully employed again! So anybody out there got a job you'll pay me to do from home? I have looked into it, of course, …

Pieces of Bolivar

This song and slide show totally captures it. Written and preformed by Martin Melancon.

Hurricane Ike hits me where I used to live: Crystal Beach, Texas

Crystal Beach is on the Bolivar Peninsula. It's kind of above Galveston. It's point A, like this:

View Larger Map

I don't know about you, but I haven't seen or read much in the mainstream media about the devastation of Bolivar Peninsula caused by Ike. The guestimates so far are that 80% of civilization on the peninsula is gone. Just gone. Poof. There were a lot of high dollar houses in Crystal Beach, most of them being vacation homes.

I guess I've been getting my information from "social media technologies." I read about it on a post on a blog of social media for a PR Class, "Houston media relies on social media in the wake of Ike." Sure 'nuff, that's what I've been doing. I wasn't seeing much of anything on the news or weather channels and I was worried about my friends who live on the peninsula full time. So I went online looking for info. First I found ABC13's live video. There I heard a reporter reaming the gov…

In Memory of 9/11: From a Canadian's point of view


Blog Talk Radio: How to listen to the Invisible Illness Week Conference with nothing more than a computer* and a telephone

*Note: Your computer has to have an internet connection and you must have Windows Media Player. You can download the latest version at the Windows Media Download Site. There is a version of Windows Media Player for Mac users as well. Mac users can also download Flip4Mac for the QuickTime player. Click here for links: How to listen to a show

BOOKMARK THIS PAGE - links to the shows

Conference Seminar Links - from National Invisible Chronic Illness Awareness Week main website

How Seminars Will Work - Register here and get some way cool goodies! Like this b-u-ti-ful bookmark:

More Info You Might Find Useful, from the BlogTalkRadio folks
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The links on the Invisible Illness Week Schedule are working now


Invisible Illness Week schedule released - and it's really exciting!

Well, it's here: The schedule for the National Invisible Chronic Illness Awareness Week Teleconference, that is. It's a doosy, and I'm not just saying that. Many of the major players in the field of invisible chronic illness are included: Jenni Prokopy of chronic, Laurie Edwards of, Jennifer Jaff of and others that I'm looking forward to hearing from and learning more about.

(The links on the schedule aren't working right now... hopefully they will get that fixed soon.)

Maureen Pratt, who I have quoted before on this blog (Chronic Monday: A patchwork of items on chronic illness and the holidays), and whose book "Peace in the Storm: Meditations on Chronic Pain and Illness" has been on my Amazon Wish List for way too long - time to buy it - will also be speaking and I'm really looking forward to that. Here's a sample of her work:

Keep My Mind Focused on Good Health

O Lord, I find it hard to reme…