The ICI Experience:

Update as of 5/13/11:   I was out of town for three days; when I returned on 5/11 I discovered that my FM Awareness Day Bloggers Unite Event was no longer accessible.  When I left it was in "Accepted" status and when I returned it was in "Declined" status. This is my best guess as to what happened.  An anonymous blogger organized a FM Awareness Day Bloggers Unite Event in 2009.  She disappeared after that event and there was no event in 2010.  I could not find any way to contact the person who did the event in 2009 to ask her about it so I applied for a new FMAD event with BU in my own name and was accepted.  At some point after my event was accepted, the original person came back and reactivated her 2009 FM Awareness Day Bloggers Unite Event for 2011.  For awhile both events by different people were online at the same time but now my event has been "declined" and is no longer accessible. My guess is that there can only be one ev...

Origin of the event The May 12 Awareness Day event was founded by Tom Hennessy in 1992, and here's the story. (CIND stands for Chronic Immunological and Neurological Diseases and these diseases include Neurofibromatosis, Chronic Fatigue Immune Dysfunction Syndrome (CFIDS)/Myalgic Encephalomyelitis, Fibromyalgia, Gulf War Syndrome and Multiple Chemical Sensitivity. ) This is an excellent interview with Mr. Hennessy by Cort Johnson of Phoenix Rising. The May 12th date was chosen to memorialize the birth date of Florence Nightingale , the English army nurse who inspired the founding of the International Red Cross. Stuff to read, watch, listen to or do CFS State of the Union podcast by Dr. Teitelbaum What You'll Learn Dr. T's podcast will update listeners on the following topics: Latest CFS/FM news — U.S. and global. Recent and upcoming research and findings. New treatments (pharmaceutical and natural therapies). Center for Disease Control CFS Awareness Campaign. Ou...