Showing posts from 2016

What is the "Endo Diet?"

Thanks to the Endo Warriors for putting this guide together.  I was told I have "allergic sensitivities" to just about everything on this list in 1989, the same year I was diagnosed with endo. The things I wasn't allergic to, my digestive system communicated to me in no uncertain terms (Irritable Colon or IBS dx in 1993) that I was not to consume them. So I thank my body's innate intelligence for watching out for me again. 

Our quick guide to foods to avoid on the Endo diet. A photo posted by Endo Warriors (@endowarriors) on May 18, 2016 at 8:16am PDT

"No Estoy Enferma." The title means "I am not sick."

This is a really creative animation of one of Frida Kahlo's most famous (among the chronically ill) self portraits, The Broken Column.  The originals are on Instagram and Tumblr  So click the play arrow and if you don't understand any Spanish I will put the translation at the bottom of this picture for you.

No cheating!  Watch the animation first!

No estoy enferma... 😔🍉🍃 #FridaKahlo #lacejadefrida #instadaily #picoftheday #instafrida #frida #flowers #friditis #creative #fearless #frases #quotes #frasesdefridakahlo #frasesdeamor A video posted by Frida Kahlo (@lacejadefridaoficial) on Aug 8, 2016 at 7:12pm PDT

No cheating!  Really.

The animation translates as:  "I am broken but I am happy to live while I can paint."  Or something to that effect.

I'd like to know more about the artist, but the site is all about Frida. 

Judgement of Others from Texas Endo Advocates

Judgement of others...#nocurenochoice #endometriosis #endosisters #chronicillness #texasadvocatesforendo #endoawareness A photo posted by TexasEndoAdvocates (@texasendoadvocate) on Jun 13, 2016 at 8:23am PDT

I've been dealing with these types of problems in my immediate family for almost exactly three years now.  Last week the problem suddenly got much worse.  More on that soon.

Endometriosis Foundation of America continues the awareness and education of our March Awareness Month into April with short videos by Padma Lakshmi, Allison Williams and so on.

Here are a few videos from the Blossom Ball this year.  Start each one individually because it really annoys me when a video starts as soon as I click on a site and won't stop.  They're all short and sweet.  Especially the one on the far right. Allison Williams' letter to endo for Lena Duncan.  Enjoy.

Endometriosis Foundation of America from Endofound on Vimeo.

In case you don't know who Allison Williams is, like I didn't:

Allison Williams Actress Allison Williams is an American actress, comedian, and singer. She is best known for her role as Marnie Michaels on the HBO comedy-drama series Girls. Williams was born and raised in New Canaan, Connecticut, and is the daughter of former NBC Nightly News anchor and managing editor Brian Williams and Jane Gillan Stoddard, a T…
WikipediaIMDb Born: Apr 13, 1988 (age 28) · New Canaan, CTHeight: 5' 6" (1.67 m)Spouse:Ricky Van Veen (m. 2015)
I would like to post more stuff from Endofound, but some of the information …

Sorry, Ma

My DM (Dear Mother) thinks that blogging is bad for me.  Sorry, Ma.  I've gotta do what I've gotta do.  And I've gotta do this.

A reminder to myself:

Absolute permission: Be exactly who you are. #regramlove @ashleywilking #inspiration #iamwellandgood A photo posted by Well+Good (@wellandgoodnyc) on Mar 29, 2016 at 5:10am PDT

Best ever: Mankoski Subjective Pain Scale for Chronic Pain

P.S. The creator of this fabulous document has endometriosis.  And you must upload a good document to Scribd in order to download this one. 

Chronically Awesome Mankoski Subjective Pain Scale for Chronic Pain Patients by Jules Shapiro

Or you can just take this jpg version: 

EndoTruths: Vital Messages to the Medical Community from Endometriosis Patients


Lupron for Endometriosis - NOT!, and a little bit of my story - Endometriomas

UPDATED:  March 21, 2016 - also World EndoMarch 2016 day


I just stumbled across this article/post about the nightmare of Lupron, on Pinterest.  I'm sharing it here because it is well written, factual, and it's a small sample of the insanity that has surrounded people with Endometriosis for decades.  And because I'm so glad I didn't take Lupron or any of the other useless but dangerous drugs that were being promoted for endometriosis back when I was first diagnosed.  (I have the Endometriosis Association, founded in 1980 by Mary Lou Ballweg, to thank for providing me with the knowledge and courage to buck the medical system from the beginning of my diagnoses.)  The nightmare is that doctors are STILL prescribing Lupron for Endo.
Hidden Clinical Trial Data About Lupron