Showing posts from November, 2009

The Fibromyalgia Wellness Project: A research project by Coolinge and Associates - it's free and it might help

"Welcome to the Fibromyalgia Wellness Project, a research study sponsored by the National Institute of Arthritis, Musculoskeletal and Skin Diseases (NIAMS), National Institutes of Health. This project is conducted by Collinge and Associates, an independent research organization directed by William Collinge, PhD. The project is now inviting participation by people living with fibromyalgia."
This is helping me, when I remember to make the daily entries!

You will need to allow a little time to get signed up, and then a little more for the learning curve on how to use the website. But it's pretty intuitive and easy to learn.

XMRV retrovirus: not just for ME/CFS

1/29/12 Update: 
UPDATED: In a Rare Move, Science Without Authors' Consent Retracts Paper That Tied Mouse Virus to Chronic Fatigue Syndrome
 I spent the morning of 10/23 trying to understand what this new XMRV research is, and what it means. I wanted to include a picture of the virus but couldn't find one I liked except for the heavily copyrighted image by the Whittemore Peterson Institute, shown on the main page of the Phoenix Rising XMRV Info Center (a most excellent source, and with real-time updates). I didn't figure the WPI was going to grant the little ol' ICIE Blog permission to use their cross section image any time soon, so I waited to post this until I could draw one myself. Luckily for all of us, I found a really good image today on

Aren't those fuzzy Cheerios-looking things just wild?

Anyway, turns out XMRV could be related to several illnesses including Fibromyalgia. This post contains the gist of what I came up with in my searc…