Chronic Monday (on Wednesday!): NFA announces 2008 National Fibromyalgia Awareness Day campaign, "Caring By Sharing"



There are three facets to the NFA's Caring By Sharing Campaign:









The NFA has done a good job of getting the initial information out early this year. But in the Sharing Awareness program they're still saying "Check back soon for free materials, such as templates for press releases, facts about fibromyalgia and sound bites, to assist you in telling your story." It's getting late for people with FM to be getting started on this type of thing. Hope they'll get this stuff out soon...

They're also still saying "Hold a "Take the Fibromyalgia Pledge to Care" event (more information coming soon!)" in the Sharing Facts program. I don't know about you, but it's too late for me to be taking on anything of this magnitude now, a mere 60 days before the event...


I'm late with Chronic Monday this week because I've been busy packing stuff up to put in a U-Haul and take to a storage facility in the Savannah area. We're boxing up all our "clutter" and taking it to where we want to move once the house sells. We then plan to re-join our clutter by moving ourselves and the rest of our worldly goods to a new house. I'll probably be late with Chronic Monday next week too, same reason.

Comments

Post a Comment

Welcome to The ICIE and thank you for commenting!

Note: If you are leaving a comment on this blog in an effort to advertise anything except your own valid topical blog or website, your comment will be marked as spam and will not be posted.

Popular posts from this blog

Marisol Maldonado "comes out" of the autoimmune closet with husband Rob Thomas' hit song & video "Her Diamonds" - check it out; it's way cool

Image
Watch the music video Rob Thomas - New Music - More Music Videos I think Marisol Maldonado has taken a very brave step, career-wise, to come out like this about her autoimmune disease. Being a model is a very physical profession and as those of us with ICI know, coming out at work, any kind of work, is a big deal. I'd like to send her a really big thank you for raising awareness of autoimmune disease in general. I wonder what the song/video title means? Her Diamonds. And she says ooh I can't take no more Her tears like diamonds on the floor And her diamonds bring me down 'Cause I can't help her now Losing her sparkle? Here's what Rob Thomas says about it: The album’s first single, the kaleidoscopic “Her Diamonds,” is the most personal song Thomas has yet committed to disc. Rob’s wife Marisol is courageously battling an autoimmune disease, and “Her Diamonds” was written “about a couple dealing with that on a day-to-day basis,” explains Thomas. “There’s an incre
Read more

Herniated cervical disc - Oh my!

Image
A couple of blog posts ago I mentioned the results of recent MRIs of my neck and brain ( What do The Tough do when they get ANOTHER ICI diagnosis (or two*) ? ). Last month I had an appointment with a spine specialist to see what might be done about the herniated cervical disc diagnosis that was made from the MRI of my neck. This doctor seemed like a nice guy, and after about 10 minutes and $280 he had me convinced that my next step should be to have the herniated disc replaced with an artificial one. He started rattling off information after we exchanged pleasantries; lucky for me I knew to have pen and paper handy, and I can translate rattle into scribble pretty well. To his credit, he used mostly words that I could understand, or at least spell. He did a short exam on my hands and arms and said good - no loss of strength. Then he told me about something called "anterior cervical discectomy", an operation performed on the upper spine to relieve pressure on one or more ner
Read more

Nerve Damage on the Vaginal Cuff After Total Hysterectomy

 Here's the link to the actual article describing my experience:  https://medium.com/@SherrilLynn/nerve-damage-to-the-vaginal-cuff-after-total-hysterectomy-6d9a2e576f15 .     This has happened to me and I can find virtually NOTHING written about it, except the pain filled pleas of other women it has happened to, looking for answers as to why this has happened to them and what they can do about it.  I'm going to start a place for other women who have and are experiencing Nerve Damage to the Vaginal Cuff after a total hysterectomy (as far as I can tell there's no cure and nothing to do about it but pain management) to publish their stories here on the ICIE blog.  A collection of experiences of women who have Nerve Damage to the Vaginal Cuff (I'm going to shorten it to NDVC since no one in the medical field has deigned to give a name to this diagnosis), after a total hysterectomy.  I'm pretty sure there are quite a few of us out there but no one has counted so who k
Read more