A survey about patient bloggers - for the ICIE's 4th anniversary

I started the ICIE blog on May 19, 2007.  I was recently told I was an "early adopter" in this respect (by Meredith Gould in the comments to her post Fibromyalgia Awareness Day and Why I Give A Hoot), and  I was wondering what kind of post to do to celebrate my blog's creation when I read about the Tufts University Medical School Patient Blogging Survey on Trish Torrey's about.com Patient Empowerment blog in the post Are you a patient?  Do you blog?  Survey Sez... 

(Of course that's bloggers who are medical patients, as opposed to bloggers who are cool, calm and collected.)

I took the survey, thought it was short and very interesting, and am looking forward to reading about the results.

The more respondents they have the more accurate the results.  If you have a patient blog please think about taking a few minutes to complete the survey:
"Lisa Gualtieri teaches health communications at Tufts University. She and her colleagues have put together a survey to learn more about patient bloggers, why they blog, what the results are, and more.  If you write a patient blog, and you complete their survey, you may be entered in a drawing for Amazon gift certificates, too (That is, if you choose to include your personal information, which is not a requirement.) Here's a link to the Tufts Patient Blogging Survey."
From Are you a patient? Do you blog? Survey Sez... by Trish Torrey

Comments

  1. AvivaMay 26, 2011 at 6:53 PM

    Happy blogoversary, Sherril!

    I'll go take the survey right now.

    Your blog was one of the first that I found when I went looking for people like me after I got sick. Thanks for being there!!

    ReplyDelete
  2. SherrilMay 26, 2011 at 11:31 PM

    Thanks Aviva! I count you as one of my best virtual friends. BVF... did I just make that up or is it already a thing?

    ReplyDelete
  3. mutuelle swiss lifeJune 28, 2011 at 6:00 AM

    very interesting

    ReplyDelete
  4. Good DaysAugust 11, 2011 at 1:47 PM

    I work for the organization Good Days from Chronic Disease Fund. I am searching blogs, community groups and organizations who may want to learn more about this program.

    We work with chronic disease patients to help them find the medical care they need at an affordable price. While we cannot completely take away they financial burden felt by these people, we do what we can to make it as minimal as possible. We couldn't be as successful as we are without the help from our gracious donors and volunteers. Visit our website for more information about us. http://www.gooddaysfromcdf.org

    ReplyDelete
  5. Kathy GarolskySeptember 15, 2011 at 4:35 AM

    Good post here.Thanks for sharing this info.

    ReplyDelete
  6. Natural deodorantOctober 26, 2011 at 2:05 PM

    Hi...

    Nice blog. and also great information.
    Thanks for sharing this useful information.

    ReplyDelete

Post a Comment

Welcome to The ICIE and thank you for commenting!

Note: If you are leaving a comment on this blog in an effort to advertise anything except your own valid topical blog or website, your comment will be marked as spam and will not be posted.

Popular posts from this blog

Marisol Maldonado "comes out" of the autoimmune closet with husband Rob Thomas' hit song & video "Her Diamonds" - check it out; it's way cool

Image
Watch the music video Rob Thomas - New Music - More Music Videos I think Marisol Maldonado has taken a very brave step, career-wise, to come out like this about her autoimmune disease. Being a model is a very physical profession and as those of us with ICI know, coming out at work, any kind of work, is a big deal. I'd like to send her a really big thank you for raising awareness of autoimmune disease in general. I wonder what the song/video title means? Her Diamonds. And she says ooh I can't take no more Her tears like diamonds on the floor And her diamonds bring me down 'Cause I can't help her now Losing her sparkle? Here's what Rob Thomas says about it: The album’s first single, the kaleidoscopic “Her Diamonds,” is the most personal song Thomas has yet committed to disc. Rob’s wife Marisol is courageously battling an autoimmune disease, and “Her Diamonds” was written “about a couple dealing with that on a day-to-day basis,” explains Thomas. “There’s an incre
Read more

Herniated cervical disc - Oh my!

Image
A couple of blog posts ago I mentioned the results of recent MRIs of my neck and brain ( What do The Tough do when they get ANOTHER ICI diagnosis (or two*) ? ). Last month I had an appointment with a spine specialist to see what might be done about the herniated cervical disc diagnosis that was made from the MRI of my neck. This doctor seemed like a nice guy, and after about 10 minutes and $280 he had me convinced that my next step should be to have the herniated disc replaced with an artificial one. He started rattling off information after we exchanged pleasantries; lucky for me I knew to have pen and paper handy, and I can translate rattle into scribble pretty well. To his credit, he used mostly words that I could understand, or at least spell. He did a short exam on my hands and arms and said good - no loss of strength. Then he told me about something called "anterior cervical discectomy", an operation performed on the upper spine to relieve pressure on one or more ner
Read more

Nerve Damage on the Vaginal Cuff After Total Hysterectomy

 Here's the link to the actual article describing my experience:  https://medium.com/@SherrilLynn/nerve-damage-to-the-vaginal-cuff-after-total-hysterectomy-6d9a2e576f15 .     This has happened to me and I can find virtually NOTHING written about it, except the pain filled pleas of other women it has happened to, looking for answers as to why this has happened to them and what they can do about it.  I'm going to start a place for other women who have and are experiencing Nerve Damage to the Vaginal Cuff after a total hysterectomy (as far as I can tell there's no cure and nothing to do about it but pain management) to publish their stories here on the ICIE blog.  A collection of experiences of women who have Nerve Damage to the Vaginal Cuff (I'm going to shorten it to NDVC since no one in the medical field has deigned to give a name to this diagnosis), after a total hysterectomy.  I'm pretty sure there are quite a few of us out there but no one has counted so who k
Read more