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Tuesday, July 31, 2007

Words Can Be So Powerful



For background on this poem and its author visit the website below.

This is What I Want To Be
(dedicated to sufferers of Fibromyalgia)

I live my life from days, to months, to years
I live my life in sorrow, in fear, in tears

For once in my life, this is what I want to be
Forever glad, forever jovial, forever joyous, forever happy

I have so many creative ideas in my heart and mind
My weakness within stalls my soul and the world leaves me behind

I have so many things that I want to do; want to say
But, the beast within holds my spirit captive; I can’t get away

I tire so easily; the fatigue is relentless
I can’t seem to do the dishes, sweep the floor or even get dressed

Because my heart is in pain; my body is in pain too
Doc says, “There is nothing wrong.” Are you sure this is true?

Take this pain away-tear it out from within me
For it keeps me down and low, I can’t be what I want to be

I want to be able to finish things that I start
I want to have supportive friends that love me from the heart

I want my husband to have the wife of our early years
I want my son to have a strong mother with no fears

I want to feel “normal” in the company of others
Not feel like a failure as a person, wife and mother

I want to enjoy the things that I used to do
I want to live my life to the fullest just like you

Now the question that I must ask, “is that possible for me?”
For these are the things that I really want to be

by Veronica E. Thomas
BellaOnline's Fibromyalgia and CFS Editor

Saturday, July 28, 2007

How this blog relates to Live Earth Day



The Endometriosis Association has it down pretty darn pat in Toxic Link to Endo:

As explained in books including Our Stolen Future, Dying from Dioxin, and "The Endometriosis Sourcebook", scientists have come to the realization that certain chemical compounds, such as dioxin, have profound immunological and reproductive impacts at exposures far below the level known to cause cancer. These chemicals are known as endocrine disruptors and can mimic hormones and interfere with many physiological processes. Scientists are still researching the mechanisms that are used, but they already know that these man-made chemicals persist in the body for years. PCBs (polychlorinated biphenyls) are a group of dioxin-like chemicals that were used in industry until they were banned in the 1970s. Some PCBs persist in the environment for more than one hundred years.




I expect that one day everything that's wrong with me that's not strictly due to the aging process will be proven to have been caused by some type of environmental pollution. The Fibromyalgia connection is couched in terms of science fiction for now,



but that will change. All in good time. Or bad time, from my perspective.

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Friday, July 27, 2007

Update on National Invisible Chronic Illness Awareness Week

Hello All,

I know I've promised to follow up on all kinds of things here in my trusty blog. And I intend to do so. Eventually. But I have just been invited to host an online seminar (webinar?) during the National Invisible Chronic Illness Awareness Week Conference. And guess what subject they want me to pontificate upon? "Blogging About Your Illness"!!! Isn't that just perfect? I'm going to take this as a sign that it's time to get back to the point of this blog (which is the invisible chronic illness experience, in case you've forgotten with all of my fun wanderings lately).

Information about scheduling for the Conference will be posted here as it becomes available.

Woo Hoo!

Look what I can do! Free for 14 days...

Trying this for 14 days...
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Wednesday, July 11, 2007

ICI Awareness Week Update

After Live Earth


I could not move without feeling pain somewhere (or everywhere) after our Live Earth Concert Watching Party (more on this FM phenomenon later). So I'm just now getting to continue this thread on the Live Earth events.

Our party went well. I think fun was had by all, good food was eaten, good drinks were drank, no one got drunk, and we learned a little bit about our environment too.

I think the whole concert organization and communication to the world (my part of it anyway) was and is phenomenal! Today, a mere four days after the event, we can point and click and apparently watch and listen to anything from the whole 24 hour world-wide event. Incredible.

Here are a few sites that look good from the "after" perspective:

Artist photos




















Video

Keith Urban featuring Alicia Keyes--just watch the first song, Gimme Shelter, and you'll get it. Need I say: TURN IT UP?

I was looking for what I call a "Jimi Hendrix - Woodstock - Star Spangled Banner" moment and John Mayer doing "Gravity" came as close as anything. But I haven't seen the whole thing yet so I reserve the right to change my mind.

Lest I be accused of discrimination on the basis of sex, next post I will use photos of all women. Also next post I'll explain the connection between this blog and Live Earth.

On the issue of whether or not global warming is happening, my brother Steve is apparently declining to comment by not commenting. Unusual for him. To not comment, that is. Steve is the person who coined the term "The Sky Is Falling Party" previously mentioned by me in this blog, to describe our Live Earth Concert Watching Party. This is the site Steve recommended to me on this subject awhile ago when I was first starting to look into the whole Al Gore, An Inconvenient Truth book and movie: "Human-Caused Global Warming Slight So Far", from the Answers In Genesis website.

The Official Live Earth Blog pretty well sums it up. Take a look. And please
I want to you care, to combat climate change on a personal level, to sign the Live Earth Pledge, and to help to spread the word over the years to come.

Friday, July 6, 2007

My "The Sky Is Falling" Party


I hear second hand through my mother that my brother Steve calls our Live Earth Concert Watching Party "The Sky Is Falling Party."

Hmmm. Care to elaborate lil' bubba?

The highlights of all the concerts all over the world will be televised tomorrow on NBC from 8 pm till 11 pm EDT.

Thursday, July 5, 2007

RE: Matt & Stacey Say...


So my cousin Matt Johnson is a boat captain and eco tour guide in south Florida. Here's what he says about the Live Earth Concerts and the believability of the concept of global warming:
...And, if anyone has Sirius satellite radio there are three or more stations that will be covering events including some concerts world wide. The "Discovery" channel (#116, I think??) seems to be Live Earth central through the holiday weekend. No doubt about climate change for me... I've been working the Coastal Everglades for years, a place more tuned to sea and climate than most and there are changes happening, things that old timers have never seen or heard of. Subtle changes, not even note worthy to casual observer but changes still. Water (tide) levels, new plants appearing, old plants dying, weather patterns that have been the same every year for generations shifting, fish & crab movements, you name it! Yes all of this happens naturally with time, just seem to be in a bit of a hurry if you know what I mean. I hope I'm wrong but we are still selling our lot on the water, our "retirement home site" .


The Florida Everglades

I've thought of how this whole big global warming thing relates to my small blog here. It does. So I'm not really off topic. I'll write more about this later, probably Sunday. Right now I have a party to get ready for!

Wednesday, July 4, 2007

Happy 4th of July 2007


Get products with this beautiful design on them at Cafe Press. (No, I don't get a cut. Just a pretty, free picture for my blog.)

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